Inclusive Democracies Require Voting Rights for People with Disabilities

November 30, 2011 | by

December 3 is the International Day of Persons with Disabilities–a day that marks the pursuit of full participation and inclusion of persons with disabilities in society. This post is part of a blog series that reflects on our work to advance the rights of persons with disabilities around the world.

In early September, I had the honor of co-hosting a reception at Human Rights Watch to call attention to the right to political participation by people with disabilities. During this reception, a young Peruvian woman with Down Syndrome, Maria Alejandra Villanueva, recounted her personal story of being excluded from voting based on her disability.

Maria Alejandra’s story was compelling. When she was a girl, Maria Alejandra watched with interest as her family members talked about their preferred candidates and went to the polls to cast their ballots. During elections, she painted her fingertip with a black pen, saying that she had also voted. At 18, Maria Alejandra began to exercise her civic duty, and voted in every election, selecting her preferred candidates with care.

This all changed in 2010 when Maria Alejandra went to renew her national identity document. During the interview, government employees addressed all questions to her mother, ignoring Maria Alejandra. She recounted how she felt invisible and discriminated against. When the employee asked Maria Alejandra’s mother to sign for her, she protested, explaining that Maria Alejandra had voted in prior elections. “Now she won’t vote,” the official responded. Maria Alejandra and her mother objected, and they were sent to a complaints booth where they were told that government regulations only allow people with physical disabilities, not intellectual disabilities, to vote. In addition, they counseled her mother to place Maria Alejandra under guardianship.

With the support of the Peruvian Human Rights Ombudsman’s Office, Maria Alejandra filed a complaint with the National Identification Registry charging that the order violated Peru’s Constitution and the UN Convention on the Rights of Persons with Disabilities (CRPD), which Peru ratified in 2008. Just before the registration period for the 2011 presidential elections closed, the Ombudsman’s office called Maria Alejandra to inform her that she had nine days to re-register for inclusion in the voting rolls.

While Maria Alejandra triumphed in her struggle to regain the right to vote, her efforts did little to address the exclusion of more than 23,000 other Peruvians with disabilities whose names had been removed from the voter registration rolls.

Hearing of Maria Alejandra’s story, the Open Society Foundations’ Disability Rights Initiative invited Maria Alejandra to speak at a plenary session at the CRPD Conference of State Parties. Maria Alejandra’s powerful first-person account—on a panel of States’ representatives and CRPD Committee members—helped raise governments’ awareness of the unlawful policies, based on prejudice and discrimination, that are obstacles to the right of the disabled to political participation.

Following her return to Peru, the Peruvian Down Syndrome Society launched a media campaign highlighting Maria Alejandra’s testimony at the United Nations. She was invited to a meeting with the president of the National Identification Registry. Last month, citing the CRPD, the Registry issued an Executive Resolution that all persons with disabilities not under guardianship would be reinstated in the electoral rolls.

While this was a victory for Maria Alejandra, it is only a partial victory for persons with disabilities in Peru. In its Executive Resolution, the National Identification Registry failed to cite CRPD Article 29, which provides unequivocally that all persons with disabilities have the right to political participation. This right, linked with Article 12 on the right to equal recognition before the law, and the CRPD’s general principles of non-discrimination and full and effective participation in society require that the government remove the caveat that only those not under guardianship may vote.

Regrettably, such restrictions on the right to vote and to equal recognition before the law—particularly for those with intellectual disabilities and psychosocial (mental health) disabilities—is more the norm than the exception worldwide.

The upcoming International Day of Persons with Disabilities provides an occasion to think about all those who have been disenfranchised on the basis of their disability. Building inclusive, vibrant democracies depends on the active engagement of all citizens in public life. Policies that limit the participation in political processes of people with disabilities are anathema to this goal.

In our work to promote open and inclusive societies around the globe, we should be vigilant to safeguard the right to civic participation of all in the political process, especially those who are particularly disadvantaged due to state-sanctioned discrimination and prejudice.

HCA Names National 2009 Frist Humanitarian Award Recipients.

Health & Beauty Close-Up April 14, 2010 HCA has announced the recipients of the 2009 Frist Humanitarian Award.

Judy Williams, a volunteer at Los Robles Hospital & Medical Center in Thousand Oaks, Calif., CariAnna Johnson, a registered nurse at StoneCrest Medical Center in Smyrna, Tenn. and Kevin Smith, D.D.S., an oral and maxillofacial surgeon at OU Medical Center in Oklahoma City, were honored recently during a ceremony in Nashville.

Established in 1971, the awards honor outstanding individuals for their humanitarian and volunteer activities. The Frist Humanitarian Awards are given annually in recognition of the caring spirit and philanthropic work of the late Dr. Thomas Frist, Sr., a founder of HCA. Employees, volunteers and medical staff members who demonstrate commitment and dedication to providing care and humanitarianism are selected from around the country and honorees are recognized at the local level. The three national recipients are selected from more than 215 local honorees. site los robles hospital

In a release, the Company noted that the highest honor its employees, volunteers and medical staff members can receive, the Frist Humanitarian Award includes a $5,000 donation to the charity of the recipient's choice and $5,000 in cash for the employee and volunteer. The medical staff honoree receives a $10,000 donation to their charity of choice.

Judy Williams began helping patients when, as a teenager who was told she was too young to volunteer, she convinced a hospital to start a student volunteer program. She went on to spend 30 years as a nurse, an experience she calls "the best career anybody could have." Her nursing career was cut short after undergoing quadruple bypass surgery. For the last eight years, Judy has been a volunteer in Los Robles Hospital's emergency department.

Although she's retired, Judy doesn't have much free time on her hands. She still maintains her nursing license, spearheads community health fairs and organizes flu shot clinics. She also volunteers at the Conejo Free Clinic and the Hospice of the Conejo Valley. In addition, she serves as president of the Los Robles Hospital Volunteer Board of Directors.

"Judy epitomizes the enduring values - compassion and patients-first focus - upon which HCA was established more than 40 years ago," said HCA chairman and CEO Richard M. Bracken. "She is beloved by her Los Robles Hospital colleagues, and we're proud she is part of the HCA family." CariAnna Johnson, a registered nurse in StoneCrest Medical Center's labor and delivery unit, has always known caring for others is her calling. But in 2003, despite the demands of her career and her roles as a wife and mother of five children, she started volunteering with Annabelle's Wish, a nonprofit organization that provides basic necessities to Chinese orphans. She's taken about a dozen self-funded trips to China, volunteering on projects like painting orphanages and distributing blankets and diapers.

She has also journeyed to Africa where she helped orphans and provided AIDS education to HIV-positive patients and assisted with surgeries, working long hours without the benefit of modern medical advances. More recently, CariAnna partnered with Dr. Afam Ikejiani to launch Humanity Bridge, an international nonprofit organization that seeks to provide medical care, education and orphanage support.

"With single-minded purpose, CariAnna has dedicated her life to helping and caring for others," said Bracken. "The impact she's having on people throughout the world is a reminder that individuals become caregivers simply because this profession is an extension of who they are. We appreciate CariAnna's devotion to the cause of helping others and the example she sets for all of us." Dr. Kevin Smith's passion is helping children grow up to have happy, normal lives. The oral and maxillofacial surgeon has dedicated his life and his practice to cleft lip and palate research and treatment. In fact, he donates his own money and resources to travel to Tecate, Mexico, several times a year to perform life-altering operations for children in need. losrobleshospitalnow.net los robles hospital

At OU's Department of Oral and Maxillofacial Surgery, Dr. Smith helped form a cleft palate team. In addition, he created the Oklahoma Cleft Support Group and started A Smile for a Child Foundation. The foundation provides financial assistance and emotional support to children with cleft lip and palate and other craniofacial anomalies.

"Dr. Smith has generously given his time and surgical skill as well as personal resources to improve the lives of children," said Bracken. "The impact he has had on so many lives is an inspiration, and reminiscent of the example set by Dr. Frist Sr. many years ago." ((Comments on this story may be sent to health@closeupmedia.com))

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Aryeh Neier

Aryeh Neier is president of the Open Society Foundations.

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The Open Society Foundations work to improve the lives of the world's most vulnerable people and to promote human rights, justice, and accountability. This blog aims to bring that work a little closer by giving our experts and grantees a platform to reflect on their issues, sharpen their thinking, and engage in a conversation on how to advance open society values around the globe.

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